Surgeries, Head Colds, and Planning on Being a Little Bit Selfish.

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Waiting for his knock out medicine.

Michael had a minor operation on Monday. Basically his testicles didn’t descend into the sac and they moved them into the proper position. No big deal. In fact, I hear lots of boys have one or both testicles ectopic at birth. In the past 4 days he has been a joy. That is, until he caught a head cold. Colds are something I can also handle, I mean it’s not like this is my first time handing out baby Tylenol and giving snuggles but Anthony has a cold also and my husband, Sam, has pretty serious tooth  pain…at the same time. What does that mean for me? Load up on the coffee and plan my mommy day for about 2 weeks from now when everyone is back to normal. Don’t get me wrong Sam is helpful, in fact he stayed up with Michael until about 3am last night so I could get some sleep. Once he finally did get to bed though Anthony was up and wanting attention. Enter 4:14am grumpy mama. Oh you want juice? I’d like a full nights rest!! But I get him his juice, send him to the bathroom, check the fever and tuck him back in hoping everyone sleeps until 2pm the following day. Wishful thinking and it didn’t come true. Michael woke up in a very needy mood. I can only snuggle one of you at a time guys!

So I’ve decided that I’m going to do a bit of pre-planning in the future.

Mama’s need to be a little selfish sometimes. I have joined a virtual book club, nothing serious, just a book a month and I’m going to set aside at least 2 days a month to do something for me-alone. No cooking dinner, no giving baths, no driving anyone to anything, no working, no studying, just mama’s day to be Sarah. I don’t know what exactly I’ll do on those days; maybe sit in the library and read or go catch a movie. As important as our date nights are and as much as I love having a family day out somewhere everyone needs a moment to be alone. Taking care of myself makes me able to take care of my family and unless I really try to schedule that time I end up spending the day on the couch watching Thomas the Tank Engine between loads of laundry.

I’ve also been toying around with the idea of planning a meetup for us hemo moms. Outside of the events relating to our community. Maybe a halfway point where we can get the kids together and get to know each other besides over the internet. Now since I don’t have money for a serious vacation except once in a blue moon this will have to be limited to people in the Central/North Florida regions. Let me know what you guys think! As always you can reach me via email; hemophiliaandhim@gmail.com on facebook or on here.

Mama

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Eleanor Roosevelt said, “A woman is like a tea bag – you can’t tell how strong she is until you put her in hot water.”

My whole world; Anthony. <3

I have never read any truer words. We are the warriors of our families. The ones on the phones, up all night, packing the hospital bags and kicking crummy nurses out of our children’s lives. When I get overwhelmed I continue on anyway. Why? Because I’m his Mama. Because he needs me to be his everything. It’s a tough job that comes with no pay and little recognition but that doesn’t matter. What matters is the my boys know what love is and see how strength can make anything possible. Hats off to all you ladies who are the fiercest and gentlest women I know. Kind hands and strong wills make a Mama what she is and I know billions of you out there each day are beating the odds simply by rising to the occasion.

 

Stranger Danger!

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With so many dangers in the world today I try my hardest to make sure Anthony is aware of himself. He doesn’t run off into parking lots because he knows a car could hit him. He doesn’t leave my side because he knows a stranger could take him. Call me crazy but the best person at keeping Anthony in check every second of every day is Anthony. He isn’t frightened of those around him but aware that they could cause him harm. Do you guys teach your kids these thing when they are young? Do you think 3 is too young to be learning about kidnappers and car accidents? I’ve even taught him my whole name so if something happens he can tell someone who his mommy is. When I think he’s ready I’ll go ahead and drill in my phone number. Why shouldn’t I?

For the Readers

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You guys are awesome! I couldn’t sum that up any better. When I started this blog I thought people might think I’m a bit whiney or too protective or not protective enough (you know how judgey people can be) but the support I’ve gotten in the past week alone has made me want to continue to see this through even more. Thank you so much for reading. More than reading in fact, thank you for letting us know that you are here and care about what happens to our lives. Thank for the input, suggestions, questions and all around conversation. I wouldn’t be writing still if it wasn’t for you. I hope we can make this even bigger and that you all will continue to go through this with us. And if any of you are in the central Florida area around December I expect to see you at Lake Eola for our Holiday Walk. *winky face

You folks make my day.

A note to the woman who contacted me, email me again! I don’t know how but I can’t locate the email anyway but I did intend to call you.

Fundraising and how your money is spent.

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Each and every day I try to do something nice for someone else. I don’t have to know them, I just have to care enough that they get that small thing they are needing. When I fundraise for the Hemophilia foundation I know I’m doing just that. With the money they receive they do more than just look for a cure.

They supply families with helmets, knee pads, elbow pads, medic alerts, gas cards to get to appointments and factor for emergencies when insurance craps out (and it does crap out).

They have a summer camp for the kids with nurses on staff and a day at sea world so families can find support in other bleeder families.

They do not sell merchandise or fundraise to pay for the next fundraiser but rather give hemophiliacs scholarships to go to college and caregivers can receive scholarships to go to college so they may enter the medical field.

I am 100% behind this organization because they care about the people who make up their cause. These kids go through a lot before adulthood and continue to battle, with our Hemophilia foundations that battle is the tiniest bit easier.

 Do a small favor for someone you don’t know and donate. Even a dollar adds up if enough people care to give one.